Health Advocate & Youth Leader; Founder of Ayana's Hope Cells; SCDAA National Teen Ambassador; Sickle Cell Awareness Champion
Ayana Lee Johnson Biography
Ayana Lee Johnson is a health advocate and youth leader focused on raising awareness about sickle cell disease. Diagnosed with sickle cell at birth, Johnson has used her personal experience to inform her work in education and advocacy. She frequently discusses the realities of living with sickle cell disease, describing pain that is often invisible yet deeply felt, and shares these insights to support others in the sickle cell community.
Johnson served as the SCDAA National Teen Ambassador, where she made public appearances, led education campaigns, and worked to secure support for the SCDAA mission from both public and private sectors. Her advocacy has included discussions with President Joe Biden and legislators about access to affordable medication. Johnson has launched a nonprofit, lobbied for legislation, and engaged with policymakers, earning recognition as the SCAY Youth Advocate of the Year. She has been featured in the CDC Foundation's "Stories of Sickle Cell" initiative and appeared on television programs such as "Coast Live" to share her story.
In addition to her advocacy, Johnson is an honors student and competitive dancer with national titles, and has participated in summer intensives with Dance Theatre of Harlem and Joffrey Ballet School. She plays the violin and competes in pageants, holding titles including Miss America's Outstanding Teen Piedmont Region, Miss Roanoke Valley's Outstanding Teen, and Miss Teen Virginia. Johnson has also served as an ambassador for Children's Hospital of the King's Daughters and as a Youth Legislative Advisor for a Virginia state delegate.
Johnson is the founder of Ayana's Hope Cells, a nonprofit organization dedicated to supporting the sickle cell community. Her honors include the St. Peter Claver Service and Sickle Cell Activism Award, the Making the Difference – Sickle Cell Champion Warrior Award and Scholarship, and the Excellence Girls Club Pioneer Award. She has also been recognized in Suffolk News Herald's 20 Under 21. Johnson pursues interests in medicine and the arts, with academic plans in pre-med and dance and choreography.
Ayana Lee Johnson Videos
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Ayana Lee Johnson is a keynote speaker and industry expert whose speaking topics include Government, Health & Wellness, Healthcare, Inspirational, Overcoming Adversity, Resilience, Social Activism, Youth -
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Ayana Lee Johnson is a keynote speaker and industry expert who speaks on a wide range of topics. The estimated speaking fee range to book Ayana Lee Johnson for your event is available upon request. Ayana Lee Johnson generally travels from Suffolk, VA, USA and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Antomius Wise, Robert Paylor, Matt Blanchard, Matt Hay and Annabel Quintero. Contact All American Speakers for ratings, reviews, videos and information on scheduling Ayana Lee Johnson for an upcoming live or virtual event.
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