Health Advocacy Leader & Veteran Educator; Founder of The Lupus Liar; Author of "Diary of a Mad Lupus Patient"; TEDx Speaker
Hetlena Johnson Biography
Hetlena Johnson is a nationally recognized author, TEDx speaker, lupus awareness advocate, and veteran educator whose personal experience with lupus has shaped a career focused on education, health advocacy, and digital innovation. Following her lupus diagnosis, Johnson committed to demonstrating that a chronic illness does not have to limit one's quality of life. This perspective has informed her work in patient advocacy and public speaking, where she addresses lupus awareness, health equity, and digital education.
Johnson holds an Educational Specialist degree in Computing Technology in Education with an emphasis in instructional design. Her career spans roles as a professional educator, staff developer, curriculum software consultant, and project coordinator for the development of the South Carolina Lupus Registry. Johnson is certified as an NSRF Critical Friends Group Coach and Google for Education Innovator, and she specializes in creating accessible digital learning environments for educators and patients.
Johnson is the founder of "The Lupus Liar," a platform dedicated to sharing her journey and advocating for the lupus community. She is the author of "Diary of a Mad Lupus Patient" and "Traveling With Lupus." Johnson also hosts the podcast "Conversations with Lupus | Unscripted," where she discusses living with lupus and offers support to others facing chronic illness. Her TEDx talk at TEDxDenverEd brought her message of resilience to a national audience, and she has presented at the Medical University of South Carolina and the M.U.S.C.L.E. research group at MUSC, among other venues.
As a volunteer leader with the Lupus Foundation of America, Johnson served as Chief Volunteer Officer for South Carolina and co-developed the South Carolina Lupus Registry. Her work has been recognized in peer-reviewed research, and she has spoken at national conferences on topics such as health disparities, early diagnosis, and patient-centered care. Johnson's advocacy particularly addresses the needs of women of color and aims to educate public health professionals and primary care providers about lupus.
Johnson continues to share her experiences with lupus, emphasizing the importance of living in the present and managing daily symptoms. Through public speaking, writing, and digital media, she remains a prominent voice in lupus advocacy, education, and health equity.
Hetlena Johnson Videos
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Our experienced booking agents have successfully helped clients around the world secure speakers like Hetlena Johnson for speaking engagements, personal appearances, product endorsements, or corporate entertainment since 2002. Click the Check Availability button above and complete the form on this page to check availability for Hetlena Johnson, or call our office at 1.800.698.2536 to discuss your upcoming event. One of our experienced agents will be happy to help you get speaking fee information and check availability for Hetlena Johnson or any other speaker of your choice. -
What are the speaker fees for Hetlena Johnson
Speaking fees for Hetlena Johnson, or any other speakers and celebrities, are determined based on a number of factors and may change without notice. The estimated fees to book Hetlena Johnson are under $10,000 for live events and under $10,000 for virtual events. For the most current speaking fee to hire Hetlena Johnson, click the Check Availability button above and complete the form on this page, or call our office at 1.800.698.2536 to speak directly with an experienced booking agent. -
What topics does Hetlena Johnson speak about?
Hetlena Johnson is a keynote speaker and industry expert whose speaking topics include Author, Autoimmune Disease, Disruptive Thinking, Health & Wellness, Influential Women, Medicine, Mental Health, Podcast Host, Resilience, Storytelling, Stress Management, TED, Thought Leadership, Women's Health -
Where does Hetlena Johnson travel from?
Hetlena Johnson generally travels from Lexington County, SC, USA, but can be booked for private corporate events, personal appearances, keynote speeches, or other performances. For more details, please contact an AAE Booking agent. -
Who is Hetlena Johnson’s agent?
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Hetlena Johnson is a keynote speaker and industry expert who speaks on a wide range of topics. The estimated speaking fee range to book Hetlena Johnson for your event is available upon request. Hetlena Johnson generally travels from Lexington County, SC, USA and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Terry Wahls, Matthew Emerzian, Grace Wethor, David H. Rosmarin and Lane Gardner. Contact All American Speakers for ratings, reviews, videos and information on scheduling Hetlena Johnson for an upcoming live or virtual event.
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