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Annie Kennedy

Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases

  Categories:
Health and Wellness
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Annie Kennedy Biography

Focused on improving health outcomes for people living with Duchenne muscular dystrophy, Annie Kennedy's work includes building strong partnerships with policy makers, federal agencies, Industry, and alliances that can serve as force multipliers in moving Duchenne community priorities forward. Current areas of emphasis include engagement around PDUFA VI/VII and the 21st Century Cures Act, MD-CARE Act implementation, engagement with the FDA and Industry around regulatory policy and therapeutic pipelines, launching a national newborn screening pilot program, developing resources for adults with Duchenne, optimizing clinical trial infrastructure, and innovating around therapy valuation and access issues.

Kennedy currently serves on the Board of Directors of Cure SMA; on the Steering Committees of 'Transition to Care' coalition and the Patient-Driven Values in Healthcare Valuation (PAVE); as member of the National Health Council's Valuation Work Group, the Caregivers Pathway Task Force, and the National Burden of Rare Disease Study Advisory Group being led by the Every Life Foundation. Kennedy recently served as a Design Team member of the NCATS/ORDR Tool Kit Project and on the FasterCures Patients Count Leadership Council.

Contact a speaker booking agent to check availability on Annie Kennedy and other top speakers and celebrities.

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FAQs

  • HOW TO BOOK Annie Kennedy?

    Our booking agents have successfully helped clients around the world secure talent like Annie Kennedy for both live and virtual events for over 15 years. The team at All American Entertainment represents and listens to the needs of organizations and corporations seeking to hire keynote speakers, celebrities or entertainers for speaking engagements, personal appearances, product endorsements, or corporate entertainment. Fill out a booking request form for Annie Kennedy, or call our office at 1.800.698.2536 to discuss your upcoming event. One of our experienced agents will be happy to help you get pricing information and check availability for Annie Kennedy or any other celebrity of your choice.

  • HOW MUCH DOES IT COST TO BOOK Annie Kennedy?

    Speaking fees for Annie Kennedy, or any other keynote speakers and celebrities, are determined based on a number of factors and may change without notice. The amount that Annie Kennedy charges to speak often varies according to the circumstances, including their schedule, market conditions, length of presentation, and the location of the event. The speaker fees listed on this website are intended to serve as a guideline only. In some cases, the actual quote may be above or below the stated range. For the most current fee to hire Annie Kennedy, please fill out the booking request form or call our office at 1.800.698.2536 to speak with an experienced booking agent.

  • WHO IS THE AGENT FOR Annie Kennedy?

    All American Entertainment has successfully secured celebrity talent like Annie Kennedy for clients worldwide for more than 15 years. As a full-service talent booking agency, we have access to virtually any speaker or celebrity in the world. Our agents are happy and able to submit an offer to the speaker or celebrity of your choice, letting you benefit from our reputation and long-standing relationships in the industry. Fill out the booking request form or call our office at 1.800.698.2536, and one of our agents will assist you to book Annie Kennedy for your next private or corporate function.

  • WHAT IS A FULL-SERVICE TALENT BOOKING AGENCY?

    All American Speakers is a "buyers agent" and exclusively represents talent buyers, meeting planners and event professionals, who are looking to secure celebrities and speakers for personal appearances, speaking engagements, corporate entertainment, public relations campaigns, commercials, or endorsements. We do not exclusively represent Annie Kennedy or claim ourselves as the exclusive booking agency, business manager, publicist, speakers bureau or management for Annie Kennedy or any other speaker or celebrity on this website. For more information on how we work and what makes us unique, please read the AAE Advantage.
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Users also viewed these speakers:

This website is a resource for event professionals and strives to provide the most comprehensive catalog of thought leaders and industry experts to consider for speaking engagements. A listing or profile on this website does not imply an agency affiliation or endorsement by the talent.

All American Entertainment (AAE) exclusively represents the interests of talent buyers, and does not claim to be the agency or management for any speaker or artist on this site. AAE is a talent booking agency for paid events only. We do not handle requests for donation of time or media requests for interviews, and cannot provide celebrity contact information.

If you are the talent and wish to request a profile update or removal from our online directory, please submit a profile request form.

Annie Kennedy

Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases

Travels From:
Washington, DC, USA
Speaking Fee:
Live Event: Please Contact
Virtual Event: Please Contact
More Fee Info
Categories:
Health and Wellness

Annie Kennedy Biography

Focused on improving health outcomes for people living with Duchenne muscular dystrophy, Annie Kennedy's work includes building strong partnerships with policy makers, federal agencies, Industry, and alliances that can serve as force multipliers in moving Duchenne community priorities forward. Current areas of emphasis include engagement around PDUFA VI/VII and the 21st Century Cures Act, MD-CARE Act implementation, engagement with the FDA and Industry around regulatory policy and therapeutic pipelines, launching a national newborn screening pilot program, developing resources for adults with Duchenne, optimizing clinical trial infrastructure, and innovating around therapy valuation and access issues.

Kennedy currently serves on the Board of Directors of Cure SMA; on the Steering Committees of 'Transition to Care' coalition and the Patient-Driven Values in Healthcare Valuation (PAVE); as member of the National Health Council's Valuation Work Group, the Caregivers Pathway Task Force, and the National Burden of Rare Disease Study Advisory Group being led by the Every Life Foundation. Kennedy recently served as a Design Team member of the NCATS/ORDR Tool Kit Project and on the FasterCures Patients Count Leadership Council.

Contact a speaker booking agent to check availability on Annie Kennedy and other top speakers and celebrities.

BOOK Annie Kennedy

Annie Kennedy Videos

  • Annie Kennedy, Parent Project Muscular Dystrophy
    Annie Kennedy, Parent Project Muscular Dystrophy
    In September 2019, the National Health Council held a training conference for the patient organization community to share the importance of...
  • Policy Challenges for Covering Innovative Treatments
    Policy Challenges for Covering Innovative Treatments
    The Rare Disease Lifecycle: Diagnosis to Treatment | February 28, 2018
See All Videos »

FAQs on booking Annie Kennedy

  • How to book Annie Kennedy?

    Our booking agents have successfully helped clients around the world secure talent like Annie Kennedy for both live and virtual events for over 20 years. The team at All American Entertainment represents and listens to the needs of organizations and corporations seeking to hire keynote speakers, celebrities or entertainers for speaking engagements, personal appearances, product endorsements, or corporate entertainment. Fill out a booking request form for Annie Kennedy, or call our office at 1.800.698.2536 to discuss your upcoming event. One of our experienced agents will be happy to help you get pricing information and check availability for Annie Kennedy or any other celebrity of your choice.

  • How much does it cost to book Annie Kennedy?

    Speaking fees for Annie Kennedy, or any other keynote speakers and celebrities, are determined based on a number of factors and may change without notice. The amount that Annie Kennedy charges to speak often varies according to the circumstances, including their schedule, market conditions, length of presentation, and the location of the event. The speaker fees listed on this website are intended to serve as a guideline only. In some cases, the actual quote may be above or below the stated range. For the most current fee to hire Annie Kennedy, please fill out the booking request form or call our office at 1.800.698.2536 to speak with an experienced booking agent.

  • Who is the agent for Annie Kennedy?

    All American Entertainment has successfully secured celebrity talent like Annie Kennedy for clients worldwide for more than 20 years. As a full-service talent booking agency, we have access to virtually any speaker or celebrity in the world. Our agents are happy and able to submit an offer to the speaker or celebrity of your choice, letting you benefit from our reputation and long-standing relationships in the industry. Fill out the booking request form or call our office at 1.800.698.2536, and one of our agents will assist you to book Annie Kennedy for your next private or corporate function.

  • What is a full-service talent booking agency?

    All American Speakers is a "buyers agent" and exclusively represents talent buyers, meeting planners and event professionals, who are looking to secure celebrities and speakers for personal appearances, speaking engagements, corporate entertainment, public relations campaigns, commercials, or endorsements. We do not exclusively represent Annie Kennedy or claim ourselves as the exclusive booking agency, business manager, publicist, speakers bureau or management for Annie Kennedy or any other speaker or celebrity on this website. For more information on how we work and what makes us unique, please read the AAE Advantage.

Annie Kennedy is a keynote speaker and industry expert who speaks on a wide range of topics . The estimated speaking fee range to book Annie Kennedy for your event is available upon request. Annie Kennedy generally travels from Washington, DC, USA and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Nancy Brown, Margaret Laws, Lynn Goldman, Jennifer Weiss-Wolf and Katie Drasser. Contact All American Speakers for ratings, reviews, videos and information on scheduling Annie Kennedy for an upcoming live or virtual event.

BOOK Annie Kennedy

Annie Kennedy Speaker Videos

  • Annie Kennedy, Parent Project Muscular Dystrophy
    Annie Kennedy, Parent Project Muscular Dystrophy
    In September 2019, the National Health Council held a training conference for the patient organization community to share the importance of integrating the patient voice into value assessment....
    Policy Challenges for Covering Innovative Treatments
    Policy Challenges for Covering Innovative Treatments
    The Rare Disease Lifecycle: Diagnosis to Treatment | February 28, 2018
BOOK Annie Kennedy

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During normal business hours, we respond to most inquiries within 4 hours.

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Speakers Similar to Annie Kennedy

This website is a resource for event professionals and strives to provide the most comprehensive catalog of thought leaders and industry experts to consider for speaking engagements. A listing or profile on this website does not imply an agency affiliation or endorsement by the talent.

All American Entertainment (AAE) exclusively represents the interests of talent buyers, and does not claim to be the agency or management for any speaker or artist on this site. AAE is a talent booking agency for paid events only. We do not handle requests for donation of time or media requests for interviews, and cannot provide celebrity contact information.

If you are the talent and wish to request a profile update or removal from our online directory, please submit a profile request form.

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