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Annie Kennedy

Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases

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Annie Kennedy Biography

Annie Kennedy, currently serving as the Senior Vice President of Legislation and Public Policy at Parent Project Muscular Dystrophy, is dedicated to improving health outcomes for those living with Duchenne muscular dystrophy. Her role involves building robust partnerships with key stakeholders such as policymakers, federal agencies, industry leaders, and alliances to advance the priorities of the Duchenne community. Her current endeavors focus on the engagement around PDUFA VI/VII, the 21st Century Cures Act, the MD-CARE Act implementation, and liaising with the FDA and industry around regulatory policy and therapeutic pipelines.

In addition to her role at Parent Project Muscular Dystrophy, Kennedy sits on the Board of Directors of Cure SMA and serves on the Steering Committees of the 'Transition to Care' coalition and the Patient-Driven Values in Healthcare Valuation (PAVE). These positions further illustrate her deep involvement in initiatives aimed at improving health outcomes and policy for those living with rare diseases.

Moreover, Kennedy's active participation extends to the National Health Council's Valuation Work Group, the Caregivers Pathway Task Force, and the National Burden of Rare Disease Study Advisory Group. Her recent contribution as a Design Team member of the NCATS/ORDR Tool Kit Project and her service on the FasterCures Patients Count Leadership Council further underscores her commitment to driving positive change in health policy and care for those living with rare diseases. Her work and commitment showcase her understanding of the complex healthcare landscape and her ability to effectively communicate and advocate for important healthcare issues.

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Annie Kennedy

Economic Cost Personal Impact and Policy Solutions. Annie Kennedy. 83 views ·...
FAQs
  • How do I book Annie Kennedy to speak at my event?

    Our experienced booking agents have successfully helped clients around the world secure speakers like Annie Kennedy for speaking engagements, personal appearances, product endorsements, or corporate entertainment since 2002. Click the Check Availability button above and complete the form on this page to check availability for Annie Kennedy, or call our office at 1.800.698.2536 to discuss your upcoming event. One of our experienced agents will be happy to help you get speaking fee information and check availability for Annie Kennedy or any other speaker of your choice.
  • What are the speaker fees for Annie Kennedy

    Speaking fees for Annie Kennedy, or any other speakers and celebrities, are determined based on a number of factors and may change without notice. The estimated fees to book Annie Kennedy are available upon request for live events and available upon request for virtual events. For the most current speaking fee to hire Annie Kennedy, click the Check Availability button above and complete the form on this page, or call our office at 1.800.698.2536 to speak directly with an experienced booking agent.
  • What topics does Annie Kennedy speak about?

    Annie Kennedy is a keynote speaker and industry expert whose speaking topics include Health and Wellness.
  • Where does Annie Kennedy travel from?

    Annie Kennedy generally travels from Washington, DC, USA, but can be booked for private corporate events, personal appearances, keynote speeches, or other performances. For more details, please contact an AAE Booking agent.
  • Who is Annie Kennedy’s agent?

    AAE Speakers Bureau has successfully booked keynote speakers like Annie Kennedy for clients worldwide since 2002. As a full-service speaker booking agency, we have access to virtually any speaker or celebrity in the world. Our agents are happy and able to submit an offer to the speaker or celebrity of your choice, letting you benefit from our reputation and long-standing relationships in the industry. Please click the Check Availability button above and complete the form on this page including the details of your event, or call our office at 1.800.698.2536, and one of our agents will assist you to book Annie Kennedy for your next private or corporate function.
  • What is a full-service speaker booking agency?

    AAE Speakers Bureau is a full-service speaker booking agency, meaning we can completely manage the speaker’s or celebrity’s engagement with your organization from the time of booking your speaker through the event’s completion. We provide all of the services you need to host Annie Kennedy or any other speaker of your choice, including offer negotiation, contractual assistance, accounting and billing, and event speaker travel and logistics services. When you book a speaker with us, we manage the process of hosting a speaker for you as an extension of your team. Our goal is to give our clients peace of mind and a best-in-class service experience when booking a speaker with us.
  • Why is AAE Speakers Bureau different from other booking agencies?

    If you’re looking for the best, unbiased speaker recommendations, paired with a top-notch customer service experience, you’re in the right place. At AAE Speakers Bureau, we exclusively represent the interests of our clients - professional organizations, companies, universities, and associations. We intentionally do not represent the speakers we feature or book. That is so we can present our clients with the broadest and best performing set of speaker options in the market today, and we can make these recommendations without any obligation to promote a specific speaker over another. This is why when our agents suggest a speaker for your event, you can be assured that they are of the highest quality with a history of proven success with our other clients.
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Tell us about your event!

During normal business hours, we respond to most inquiries within 4 hours.

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This website is a resource for event professionals and strives to provide the most comprehensive catalog of thought leaders and industry experts to consider for speaking engagements. A listing or profile on this website does not imply an agency affiliation or endorsement by the talent.

All American Entertainment (AAE) exclusively represents the interests of talent buyers, and does not claim to be the agency or management for any speaker or artist on this site. AAE is a talent booking agency for paid events only. We do not handle requests for donation of time or media requests for interviews, and cannot provide celebrity contact information.

If you are the talent and wish to request a profile update or removal from our online directory, please submit a profile request form.

Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases

Travels From:
Washington, DC, USA
Speaking Fee:
Categories:

Annie Kennedy Biography

Annie Kennedy, currently serving as the Senior Vice President of Legislation and Public Policy at Parent Project Muscular Dystrophy, is dedicated to improving health outcomes for those living with Duchenne muscular dystrophy. Her role involves building robust partnerships with key stakeholders such as policymakers, federal agencies, industry leaders, and alliances to advance the priorities of the Duchenne community. Her current endeavors focus on the engagement around PDUFA VI/VII, the 21st Century Cures Act, the MD-CARE Act implementation, and liaising with the FDA and industry around regulatory policy and therapeutic pipelines.

In addition to her role at Parent Project Muscular Dystrophy, Kennedy sits on the Board of Directors of Cure SMA and serves on the Steering Committees of the 'Transition to Care' coalition and the Patient-Driven Values in Healthcare Valuation (PAVE). These positions further illustrate her deep involvement in initiatives aimed at improving health outcomes and policy for those living with rare diseases.

Moreover, Kennedy's active participation extends to the National Health Council's Valuation Work Group, the Caregivers Pathway Task Force, and the National Burden of Rare Disease Study Advisory Group. Her recent contribution as a Design Team member of the NCATS/ORDR Tool Kit Project and her service on the FasterCures Patients Count Leadership Council further underscores her commitment to driving positive change in health policy and care for those living with rare diseases. Her work and commitment showcase her understanding of the complex healthcare landscape and her ability to effectively communicate and advocate for important healthcare issues.

Annie Kennedy Videos

  • Annie Kennedy
    Economic Cost Personal Impact and Policy Solutions. Annie Kennedy. 83 views · 5 months ago ...more. EveryLife Foundation for Rare Diseases.
  • Annie Kennedy, Parent Project Muscular Dystrophy
    In September 2019, the National Health Council held a training conference for the patient organization community to share the importance of...
  • Policy Challenges for Covering Innovative Treatments
    The Rare Disease Lifecycle: Diagnosis to Treatment | February 28, 2018

FAQs on booking Annie Kennedy

  • How do I book Annie Kennedy to speak at my event?

    Our experienced booking agents have successfully helped clients around the world secure speakers like Annie Kennedy for speaking engagements, personal appearances, product endorsements, or corporate entertainment since 2002. Click the Check Availability button above and complete the form on this page to check availability for Annie Kennedy, or call our office at 1.800.698.2536 to discuss your upcoming event. One of our experienced agents will be happy to help you get speaking fee information and check availability for Annie Kennedy or any other speaker of your choice.
  • What are the speaker fees for Annie Kennedy

    Speaking fees for Annie Kennedy, or any other speakers and celebrities, are determined based on a number of factors and may change without notice. The estimated fees to book Annie Kennedy are available upon request for live events and available upon request for virtual events. For the most current speaking fee to hire Annie Kennedy, click the Check Availability button above and complete the form on this page, or call our office at 1.800.698.2536 to speak directly with an experienced booking agent.
  • What topics does Annie Kennedy speak about?

    Annie Kennedy is a keynote speaker and industry expert whose speaking topics include Health and Wellness.
  • Where does Annie Kennedy travel from?

    Annie Kennedy generally travels from Washington, DC, USA, but can be booked for private corporate events, personal appearances, keynote speeches, or other performances. For more details, please contact an AAE Booking agent.
  • Who is Annie Kennedy’s agent?

    AAE Speakers Bureau has successfully booked keynote speakers like Annie Kennedy for clients worldwide since 2002. As a full-service speaker booking agency, we have access to virtually any speaker or celebrity in the world. Our agents are happy and able to submit an offer to the speaker or celebrity of your choice, letting you benefit from our reputation and long-standing relationships in the industry. Please click the Check Availability button above and complete the form on this page including the details of your event, or call our office at 1.800.698.2536, and one of our agents will assist you to book Annie Kennedy for your next private or corporate function.
  • What is a full-service speaker booking agency?

    AAE Speakers Bureau is a full-service speaker booking agency, meaning we can completely manage the speaker’s or celebrity’s engagement with your organization from the time of booking your speaker through the event’s completion. We provide all of the services you need to host Annie Kennedy or any other speaker of your choice, including offer negotiation, contractual assistance, accounting and billing, and event speaker travel and logistics services. When you book a speaker with us, we manage the process of hosting a speaker for you as an extension of your team. Our goal is to give our clients peace of mind and a best-in-class service experience when booking a speaker with us.
  • Why is AAE Speakers Bureau different from other booking agencies?

    If you’re looking for the best, unbiased speaker recommendations, paired with a top-notch customer service experience, you’re in the right place. At AAE Speakers Bureau, we exclusively represent the interests of our clients - professional organizations, companies, universities, and associations. We intentionally do not represent the speakers we feature or book. That is so we can present our clients with the broadest and best performing set of speaker options in the market today, and we can make these recommendations without any obligation to promote a specific speaker over another. This is why when our agents suggest a speaker for your event, you can be assured that they are of the highest quality with a history of proven success with our other clients.

Annie Kennedy is a keynote speaker and industry expert who speaks on a wide range of topics . The estimated speaking fee range to book Annie Kennedy for your event is available upon request. Annie Kennedy generally travels from Washington, DC, USA and can be booked for (private) corporate events, personal appearances, keynote speeches, or other performances. Similar motivational celebrity speakers are Esther Krofah, Lynn Goldman, Renee Wegrzyn, Dr. Bayo Curry-Winchell and Dr. Sharon Malone. Contact All American Speakers for ratings, reviews, videos and information on scheduling Annie Kennedy for an upcoming live or virtual event.

Annie Kennedy Speaker Videos

  • Annie Kennedy
    Economic Cost Personal Impact and Policy Solutions. Annie Kennedy. 83 views · 5 months ago ...more. EveryLife Foundation for Rare Diseases.
    Annie Kennedy, Parent Project Muscular Dystrophy
    In September 2019, the National Health Council held a training conference for the patient organization community to share the importance of integrating the patient voice into value assessment....
  • Policy Challenges for Covering Innovative Treatments
    The Rare Disease Lifecycle: Diagnosis to Treatment | February 28, 2018

Tell us about your event!

During normal business hours, we respond to most inquiries within 4 hours.

  • Customized Service

    Our agents find the right fit for your event

  • Unparalleled Database

    Full access to all speakers & celebrities

  • One Stop Shopping

    A reliable and unbiased point of contact

  • Logistics Management

    Your personal Logistics Manager who takes care of all event details

Speakers Similar to Annie Kennedy

This website is a resource for event professionals and strives to provide the most comprehensive catalog of thought leaders and industry experts to consider for speaking engagements. A listing or profile on this website does not imply an agency affiliation or endorsement by the talent.

All American Entertainment (AAE) exclusively represents the interests of talent buyers, and does not claim to be the agency or management for any speaker or artist on this site. AAE is a talent booking agency for paid events only. We do not handle requests for donation of time or media requests for interviews, and cannot provide celebrity contact information.

If you are the talent and wish to request a profile update or removal from our online directory, please submit a profile request form.

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